Your privacy is of great importance to RRD. We therefore adhere to the Privacy Act.
This means that your data is safe with us and that we use it only for the purpose for which we have it. In this privacy statement, we explain all that we do at RRD with information we learn about you. If you have any questions or want to know exactly what we keep track of about you, please contact RRD's data protection officer email@example.com.
Use of Personal Data:
If you are participating in one of our surveys or taking a course with us we may need some information from you. These may include:
- Name and address
- Phone number
- Email address
- Date of birth
In some cases, information will even be needed about the treating physician and some more specific information about the condition being studied.
The law calls this "personal data" and says that we may only use it if we explain exactly why and for what reason. Therefore, we will never ask for more data than minimally necessary to conduct the research and we will not give this data to other companies or agencies without your permission.
Participation in research:
When participating in a research project, we must first register you. You will then need to provide information about yourself so that we know who you are, and depending on the research, we will usually want to know a few more personal details as well. By default, we keep this information separately so that we can later prove that you were the person we were allowed to research.
During our investigations, we will then limit access to your personal data to only those individuals who are actually engaged in this investigation. Of course, we also try to use this personal data as little as possible by replacing your name and birth name with a code, for example. This means that the data from the study can no longer be directly linked to you as a person. We call this pseudonymization and only the project responsible party can again make a link between your personal data and this data by means of the registration data.
If you decide to stop participating in the study then we will no longer collect data from that point on. Already collected and pseudonymized data will remain within the study until it reaches the predetermined retention period. Your data will then be set to inactive and deleted once all legal retention periods have expired.
The contact form on our website allows you to ask us questions or make requests. In doing so, you will be required to fill in certain information. We keep this information until we are sure that you are satisfied with our response and six months thereafter. This allows us to easily access the information for follow-up questions.
Provision to other companies or institutions:
We will only give your personal data to other companies or institutions if this has been agreed with you in advance or if we are legally obliged to provide data (for example, if the legislator requires this during a check on the integrity of our research). In the first case, we have concluded a cooperation agreement or a processing agreement in which the security of the data is guaranteed and the purpose of sharing the data is clearly defined.
Security of personal data is of great importance to us. In each research project, therefore, we keep records of the actions we take to protect your privacy. These records can be requested from our data protection officer.
Data Protection Officer:
We have appointed a so-called data protection officer. This person is responsible for privacy within our organization. Our data protection officer can be contacted by e-mail at firstname.lastname@example.org and by phone 088-0875757 for all your privacy questions and requests.
Changes to this Privacy Statement:
Changes may need to be made to this privacy statement. So always pay attention to the date in the footer and check regularly for new versions.
Accessing and modifying your information:
If you have any questions or would like to know what personal data we hold about you, please feel free to contact us.
You have the following rights:
- Getting an explanation of what personal data we have
- Having access to and being able to retrieve your personal data
- Having errors corrected and being able to update your personal data
- Having outdated personal data removed
- Withdrawing consent to the use of your personal data
- Having your data anonymized or deleted
- Objecting to a particular use of your personal information
- Objecting to the use of photo or film material in which you are recognizable
File a complaint:
If you feel that we are not handling your data in the right way, do not hesitate to contact RRD's Data Protection Officer. If you do not agree, you have the right to complain to the supervisor. This is the Personal Data Authority.
Version 2.3 30-05-2018